Thursday, May 31, 2012

Saint Mark Remembers


I was touched to realize that some people have a calling in life that allows or requires (each persons choice of which!) them to be in the heart of the epidemic. One such person that I know is Beth La Rocca Pitts, Senior Pastor at Saint Mark - and the number of names she gave me made, from her life and from her Saint Mark history, me stop in my tracks. To give us a glimpse of these lives, Beth shared:

1 - Scott, my best friend from high school who died in 1991. He was survived by his parents and two siblings and three half siblings. He was 31. 2 - Mike, my high school youth director who died before Scott did but I can't remember the year. Mike was survived by his wife and two children. 3- Ben, the director of the Duke University Chorale wh
en I was in college. 4- Marcus, a friend from high school and church youth group who died sometime in the 80's. He was survived by his parents and sister. He was 30. 5- Rob and Ron, brothers who were friends of mine in high school.
They died in the 80's as well. They were 30 and 33. 6- Tim, a friend of my sister's from med school. 7- David, a friend of Scott's from the Names project staff.
These are the eight I remember from right at the beginning of the epidemic. All of them died for want of the protease inhibitors.

More recently, Tim, Mike, Davin, Marc, and Stan. All of these had AIDS, though Marc technically died of a coronary after a devastating bout of influenza. Davin got exhausted and stopped taking his antivirals. Stan developed liver cancer, Mike secumbed to kidney failure, and Tim had a massive cascade failure of all his systems.

While it is so easy to allow the pain of loss to make us close our hearts, Beth just seems to keep opening it up more. It's so easy to say - this is just too much - let's just focus on something else. But Beth keeps humor, acceptance and the purest form of love flowing. Thanks Beth, for living out my favorite Saint Francis of Assisi theme - Preach the gospel every day and, if you absolutely have to, use words. Beth really doesn't need words (even though she has them!).

Thanks, Saint Mark UMC, for truly having Open Hearts, Open Minds and Open Doors - and challenging me to have the same.

Sunday, May 20, 2012

Clay

Ride Day 2 – AV200 - May 20, 2012 - dedicated to “Clay”:
I’ve dedicated this ride day #2 to Clay, who was the partner of a dear friend until he died in 1989. My friend shared the following with me and I now share with you:
“Clay” and I were together over 4 years back in the 80’s. He was 25 when I met him, over 10 years my junior, and one of the sweetest, cutest people around. He was full of fun and loved to laugh. He had boundless energy and played hard, worked hard, and loved hard. He had a hearty laugh that I will never forget along with a smile that would melt my heart. His favorite place in the whole world was Jekyll Island where his parents had a summer home. We used to go down there frequently, laughing, talking & joking the whole way. We would ride bicycles and those small moto
r bikes around the island, whatever was available. We played endless rounds of putt-putt golf. He loved to ride bikes….what a fitting tribute to him that you will be riding, having fun, and thinking of a wonderful person, lost too early in life. God will be looking down on you for what you are doing for humanity! Clay died of complications due to ARC….actually, he got pneumonia and his mother was a Christian Scientist and didn’t believe in doctors. Clay died in 1989 and is buried in a cemetery in Peachtree City, a place he always wanted to live. I was a pallbearer at his funeral, which was one of the hardest things I have ever done.

From a personal note, Clay’s story was painful to hear – not only because of HIV/AIDS but also because of the resistance to medical help. At first, it hit me that an AIDS vaccine, even if developed may not have helped Clay. But as I prayed for Clay and those who loved him during my ride back from Rock Eagle to Emory, I realized that a vaccine can be received a little more quietly – allowing those with HIV to make decisions about their future on their own – before a related illness kicks in. I imagined Clay riding with me on Sunday. There were times that I needed a buddy because I couldn’t keep up with anyone!!

I’m so glad I got to meet Clay through the eyes of someone who loved him so dearly and I wish I could have gone for a bike ride on Jekyll Island with him since, next to on a bike, I feel closest to God on the beach. I chose Ride Day 2 for Clay because I knew there would be a Riderless Bike Ceremony at the end – just for the bikers and just before our mass group ride to the Emory campus. For me on this day, Clay was the rider we were missing. We miss you, Clay – but we will win this battle for you.

Saturday, May 19, 2012

Samuel

Ride Day 1 - AV200 - May 19, 2012 - Dedicated to Samuel

As I mentioned earlier, I have 14 days on the bike during this journey and have been honored to be introduced to 14 precious lives that we are all missing out on today. For the first day of the ride, Samuel was my new friend. It seemed appropriate because he was the partner of a close colleague of mine at Emory and his birthday would have been celebrated on May 20th - the following day. Samuel and I are both Taurus in terms of astrological categories if you're into that stuff. So I assume it would be good to have another "bull buddy" with me on the first day. Good thing, too!

Samuel's partner shared the following with me: Samuel passed away on January 15, 1996 from AIDS. He was my partner for nine years. H
e was an incredible giving person and left us too soon. Samuel was from Beirut, Lebanon, he left on vacation to London in the 70s and while he was there, war broke out and his father advised him to not come back. Samuel went on to earn a PhD in Microbiology from the University of Edinburgh and immigrated to the United States and work for CDC as a Scientist until he passed away. Samuel was a best friend to many, he would give you the shirt off his back. He was also a great cook and got great joy from having people over to our house for many great dinners. His mother taught him very well and he was a great cook of middle eastern foods. He was not your typical scientist, he enjoyed music and played the guitar, he was always very fashion forward. A trait of the Middle East, he was quick to give his opinion, even if you did not want to hear, but most times it was what needed to be said. His death was very hard on his mother who came to live with us the last 6 months of his life. I continue to be in contact with his family in Beirut, his mother passed away about two year ago. His sister lives in Beirut and his two nieces currently live in Dubai with their children.

From a personal note, I think we're all missing out. As I rode to Rock Eagle for the first 107 miles of the journey, I realized I was starving around mile 90 and had to imagine that we would have a meal prepared by Samuel when we finally arrived at camp. It gave me a chuckle as well as a realization - no, you won't - he's the reason you're doing this. So we stop missing out on getting to know the Samuel's of the world.

Happy Birthday, Samuel. You're legacy lives on and we will fight this battle for you.

Tuesday, May 8, 2012

14 Days and 14 Memorials

Journal Entry - May 8, 2012:
The first 200 miles of this journey will begin at Emory's School of Medicine in the AIDS Vaccine 200. I will ride with some new but dear friends with the Saint Mark Cycling Club. Life will be good.

The Emory Vaccine Center is working to find a vaccine for AIDS. I realize the importance of every dollar raised and am so blessed that in this crazy world, I have found wonderful supporters who have contributed almost $5000 to this cause. I have been overwhelmed by the generosity of my ride sponsors.

As I wrote yesterday, I started this journey knowing one HIV positive person. As I rolled through my sponsor list today, I realized that my journey has presented 14 memorial or "in honor of" names - and my rides cover 14 days - Atlanta (2), California (7) and New England (5). I will wear 14 ribbons with the names of each person on my ride. My next quest is to get to know the 14 loved ones - as they will inspire me and join me over the miles. I have asked the sponsors to tell me stories. My prayer now is that they will.

Monday, May 7, 2012

Called to Ride

Journal Entry - May 7, 2012:
When I first decided to ride 1000 miles for AIDS in 2012, I wasn't sure where the thought was coming from. I only knew it was a strong pull - a decisive draw - and one I could not say "no" to. I have always said I have more determination than I have good sense - but it has carried me pretty far in life so far, so I don't complain.

Last fall, I thought I knew one person who was HIV positive - a deep, dark secret carried by a dear friend. As I am one who tells the world when I have a mere cold, the thought of carrying HIV alone simply haunted me. Why? Why do we continue to create a world in which sickness causes scorn? Why - in a country based on religions of love - could we allow others to feel isolated? Why - in a world of diversity - do we fear or hate those
who think or love differently?

My journey began at a place I call home - Saint Mark UMC in Atlanta. In this home, we dare to think differently and to do differently. My second home is Emory. At Emory, we believe in courageous inquiry. We research, we teach, we serve, we strive to make the world at least a little better and healthier than it was when we arrived.

Sometimes it is so dis-heartening to step out of my cozy homes, where we are at ease with diversity and differences of opinion, to a world of angry passion. But it is time to trust that this crazy world can teach me something new while the foundations of home keep me centered on who I desire to be.